The following websites have been helpful in learning about Cloverleaf Syndrome and other craniofacial issues and their treatments. The links are meant to be a knowledge base, possibly a starting point for others, and just all around helpful. While The Alexander Foundation has found these sites helpful in their research, we feel that others need to make their own decisions on what is helpful and not helpful.
Craniosynostosis Syndromes (FGFR-Related) Craniosynostosis: cloverleaf skull Craniosynostosis NINDS Craniosynostosis Information Page Cranioysynostosis Support ASPN.org - American Society of Pediatric Neurosurg Children's Craniofacial Association: National Inst Craniofacial webpage AANS.org | Library NeurosurgeryToday.org | What is Neurosurgery | Pat |