Epilepsy
Explore 12 trusted epilepsy resources offering education, treatment information, community support, and advocacy. These organizations connect individuals, families, and professionals with guidance, research updates, and opportunities to engage through events, volunteering, and awareness efforts.
Medical, Educational & Advocacy Resources
Epilepsy Foundation
The leading U.S. resource for epilepsy education, research, advocacy, support groups, and seizure first-aid training. Also offers a 24/7 helpline and information on local chapters.
🔗 https://www.epilepsy.com
Centers for Disease Control and Prevention (CDC) – Epilepsy
Provides up-to-date statistics, prevention strategies, seizure first-aid guidance, and public health resources related to epilepsy.
🔗 https://www.cdc.gov/epilepsy
CURE Epilepsy
Focuses on funding innovative research toward a cure, offering grant information, scientific breakthroughs, and patient-focused resources.
🔗 https://www.cureepilepsy.org
American Epilepsy Society (AES)
A professional medical organization dedicated to advancing epilepsy science, research, education, and clinical practice.
🔗 https://www.aesnet.org
MedlinePlus – Epilepsy
A reliable medical encyclopedia resource linking to trusted information from the CDC, NINDS, Epilepsy Foundation, and the National Library of Medicine.
🔗 https://medlineplus.gov/epilepsy.html
Empowering Epilepsy
Provides educational programs and peer support, including diagnosis-specific information and live events such as SUDEP forums.
🔗 https://www.empoweringepilepsy.org
Epilepsy Alliance America
A national network of U.S. nonprofit member organizations offering support groups, advocacy initiatives, and community-based services.
🔗 https://epilepsyallianceamerica.org
PatientsLikeMe – Epilepsy Community
An online platform where people with epilepsy share real-world experiences, track symptoms and treatments, and connect through peer support.
🔗 https://www.patientslikeme.com/conditions/epilepsy
Exploring Epilepsy Today
A user-friendly site offering community support, lived-experience stories, and resources such as My Epilepsy Team and related discussion forums.
🔗 https://www.exploringepilepsytoday.com
Epilepsy Outlook (UK)
A UK-based charity providing regional support services, advice, epilepsy awareness training, and therapeutic programs including art therapy.
🔗 https://www.epilepsy-outlook.org
Dravet Syndrome Foundation
Focused on Dravet syndrome and related genetic epilepsies, offering family support, funding research, and maintaining international patient registries.
🔗 https://www.dravetfoundation.org
Seizure – European Journal of Epilepsy
A peer-reviewed medical journal publishing clinical research, treatment guidelines, and scholarly reviews related to epilepsy.
🔗 https://www.journals.elsevier.com/seizure
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