Research
The following websites have been helpful in learning about Cloverleaf Syndrome and other craniofacial issues and their treatments. The links are meant to be a knowledge base, possibly a starting point for others, and just all-around helpful. While The Alexander Foundation has found these sites helpful in their research, we feel that others need to make their own decisions on what is helpful and not helpful.
Discover 12 trusted craniosynostosis resources, including leading medical centers, advocacy groups, and educational platforms.
Explore 12 trusted epilepsy resources offering education, treatment information, community support, and advocacy.
VP Shunt
Here are 12 top-rated websites offering accurate, trusted information about ventriculoperitoneal (VP) shunts—Each includes a direct link for further reading.
Here are 12 of the top children’s hospitals renowned for craniofacial and craniosynostosis care, each at the forefront of surgical innovation,
multidisciplinary treatment, and family-centered support.
Explore top private schools dedicated to supporting children with disabilities. These recognized institutions offer individualized instruction, therapy services, and inclusive learning environments—while many more across the country provide similar life-changing support for students and families.
Here are 12 respected U.S. organizations serving children with disabilities— covering everything from early intervention and advocacy to education, inclusion, therapeutic support, and leadership development.
Here are 12 leading organizations that offer education, support, advocacy, and research resources for children and families affected by Chiari malformation (and related syringomyelia).
Discover 20 grassroots and family-led organizations supporting children with disabilities and their families. Founded by those with lived experience, these groups offer emotional support, advocacy, education resources, and community connections—providing guidance and compassion rooted in real-world understanding.